I started out visiting various web sites - the American Diabetes Association, Juvenile Diabetes Research Foundation and Joslin leap to mind. While they are decent at providing information, they don't offer any interaction between PWD - not tips and tricks for living a better life, nor support when things are tough. That objective led me to The Insulin Pump Forums. The amount of news is fairly low, although the latest rumors on what is coming from various insulin pump manufacturers is pretty decent. Another attraction is the interplay among PWD like me who use this device - I've learned a lot about my device that isn't printed in the user guide.
Eventually I came across TuDiabetes. Run by a group called the "Diabetes Hands Foundation" it has a number of forums, but taking a dive into finding specific things is hard because of a cludgy interface. I've used it for five years, but rarely visit because it has a lot of "cinnamon cure" type of nonsense and the same posts seem to recycle over and over.
Next up was Twitter. The hastag #doc is used by the "diabetes online community." In general, this is a collection of folks who share news and information with frequent links to their blogs. They have a weekly hour long "hangout" where a moderator asks 4 or 5 questions and people are free to chime in.
That hashtag is often used when a small core group of "diabetes advocates" go to some conference or other. It might be the American Diabetes Association annual meeting, or it is a smaller invitation only event put on by players in the diabetes industry. I've tried a few times to figure out how to get into the one put on my Medtronic, since they talk about their latest products and what is in the pipeline. This is of critical interest to me since I use their insulin pump. I will literally hang on every tweet that those select few put out during the course of the numerous presentations. I try to ask questions, but the #DOC folks in the room rarely answer - instead sticking to what is being said (good) or gossiping and chatting among themselves on the quality of the refreshments or other weighty issues. Like many others, I'm on the outside looking in. Maybe this little blog doesn't get enough page views to attract their interest. That isn't why I do this - it is to hopefully help folks who are pancreatically advantaged to understand what life is like when you are normal on the outsid
Then tonight somebody who is prominent in the #DOC seemed surprised by something posted on Tumblr in a group called "My Diabetes Secret.' That person said, "Joining the #DOC was the worst thing I ever did. Supportive? Only if you’re a big player." That caused no small amount of consternation. I wouldn't put following the #DOC as the worst thing I ever did. It does seem that they often talk to each other, and while they tout 'diabetes advocacy' (whatever that means) it seems to me that the place to start is with other PWD. There is a grain of truth in My Diabetes Secret. To their credit, the core group in the #DOC are taking that to heart. Good for them.